Kaysha and Daniel's SAT scores are back. Wow! Kaysha took the 6th grade level test and most of her scores were high school grade equivalent. Needless to say, this is her best year ever. I always look at her math scores the closest because this is her weakest area overall. She averaged 8th grade there. Since we schooled basically all the past year, she is going to take the summer off from formal schooling and just do a lot of reading. This will be good for her.
Daniel's scores were a bit more average. He took the 4th grade test and scored pretty much within the grade level or a couple above. His weakest subject remains Language Arts year after year. His strongest is Math. He is going to also spend the summer reading but will also be working on Language Arts. I have changed his curriculum here several times trying to find something that works for him and we just received a brand new system right before the testing that I am excited about. So, much to his dismay, he will be working on that all summer.
Since the weather has warmed up and the rain has mostly stopped, the big kids spend endless hours down at the creek. The same creek we always took Samuel to play. The same creek where Anna was throwing rocks and accidentally hit Samuel in the side of the head right after we found out he relapsed. The bruise lasted forever and we have this shining moment on video. In it, Mark asks the kids if they want to go throw rocks in the creek and they all of course do. When we watched it, Mark heard himself ask this and said, "No, don't go throw rocks.......bad idea." This is the same creek that flooded the whole neighborhood last winter. We have lived here over nine years now and the big kids are finally able to enjoy the freedom of going there by themselves. Well, not exactly by themselves. There is a huge group of kids the run with these days and for the most part, they all get along really well. Daniel has a lot of friends which is a huge difference from last year where he had one. He still battles shyness but if swimming is involved, he will put himself out to be included. There are only two girls in the neighborhood that are Kaysha's age. Both go to school and of course, don't like each other. Kaysha is the type of girl who will give anyone a chance, usually likes everyone and especially enjoys little kids so it is hard for her to wrap her mind around cliques. I explained to her the reasoning behind one girl not liking the other and what going to school was like when you had an obvious handicap. It was a foreign concept to her that someone would just look at you and base being your friend on appearance. In the case in our neighborhood, there is the cute thin popular girl with lots of friends and the direct opposite; the heavy goth girl with thick glasses and few friends. Ever since meeting the less popular girl, Jocelyn, Kaysha normally runs with her. She spends endless hours at our house and we all enjoy her presence. I cannot say the same about the other girl. We had invited Jocelyn to church with us last weekend but then we took the flu detour so that did not quite work out. Hopefully, she can come this weekend. (YES!!!!!)
It is Jocelyn who consistently asks about Samuel. She is the one who asked about his pictures and just this week, asked where his room was. Kaysha told me she asks about him a lot. She wanted to know what he was like and what he liked to do. It is surreal in a lot of ways. It has been a good thing in that previously, Kaysha never really talked about Samuel at all. It has been as if she just ignored the fact that he is no longer here. A few weeks ago, we were sending pictures to Esther in Ghana and she wrote that Samuel was seven now. As if he moved away. And I guess that is exactly the way it is, just interesting how they process. I suggested that she show Jocelyn Samuel's baby book and maybe some of his videos. She plans to soon. Everyone has been dragging his baby book around lately. Anna showed it to her friend just yesterday and everyone agreed that Samuel was the cutest baby ever. Kaysha wants to have a baby boy that looks just like Samuel. Daniel's friends have come in and mistook Samuel's pictures as being Daniel. And then Daniel came and asked me how old Samuel is now. Not was. Not would be. Is.
And speaking of the baby book, there are a few pictures in there of Samuel's shunt when he was still shaved and the stitching was new. Also, of his stoma with no bag. Anna asked me about these. She wanted to know what happened to his head to which I replied, "Remember when you played dinos and he was the three horn and always hit you with his horn? Well, that was how the horn got there."


And look at how happy he is!!!!!
That was a sufficient enough answer for now. I am certain we will revisit it in the future. Then she asked me about his stoma and what that was. That answer was a little more difficult since she doesn't understand the parts of the gut and why one would be sticking out.
So I told her that the stoma was like his butt and he pooped from there into a bag. She said, "Well, his butthole is in the wrong place." I laughed and said, "It sure was." She doesn't remember the stoma at all. I then showed her the picture of the surgery and scar where they put it back inside and told her that this was where they put his butthole back in the right place. That ended that conversation although the "wish we had never done that" thoughts raged around in my mind.
In other news, I received word this week that I am officially part of
Compassion International as a Child Advocate. I now represent this ministry. Child Advocate seems a natural title for me given the last several years of my life. The interview process took several weeks and one of the things I was asked to share was my testimony. That is a strange question to be asked given I have known the Lord my entire life vs. spent most of my life rejecting Him until some climactic moment where I accepted Him. I have walked with the Lord for all the days I can remember. Sure there were varying degrees of obedience and fruit from the labor, but He was always there and I knew it. I shared a brief synopsis of my life culminating with the events of Samuel's life and death. I have walked through the pits of hell where most people would give up on God. Most would ask, "How can a loving God allow all this suffering?" Most would be so angry with the way things turned out that they would not even want to hear God's name mentioned alongside loving kindness, mercy, grace or love. My testimony is that I am not most people. I am chasing the Lord with all my heart, all my soul and all my being. My life is more about loving the Lord and serving Him now more than ever. I know who the enemy is. I know where Samuel is. I have come to the place in my life where I am willingly surrendering MY will for what I thought my life was going to be about and allowing God to lead me into what His will for my life has always been. In all my wanderings here on earth, I represent Jesus Christ. I don't want to let Him down. I have never been more serious about the commitment.
I have lately been praying that God open the eyes of my Heart to see things the way He sees them and then show me how I can help. Little by little, He has allowed me to see things around me. Things in the neighborhood. Things in the spirits of others. You know what? It is breaking my heart seeing the way people treat their kids, each other, and take for granted all their God given gifts. It hurts to see people with so much potential wasting their lives. I actually asked Him to give me a break from "seeing" because things were so sad. Day after day, life goes on, people do whatever they please, and they constantly break God's heart with their actions, their words, and how they treat others. That behavior stops at the doorpost of my household. It is not coming into my house. If it sneaks in, it is quickly reminded of the rules. Like it or leave.
With that said, if you are feeling overwhelmed by the condition of the world, don't allow that to be a reason for inactivity. Start by straightening up the atmosphere in your heart, then in your home. From there let that change spill out into your daily contacts and into your neighborhood. One touch from God can change a life and He will use you to touch people if you allow Him to. Let God take your life and lead you where He wants you to make a difference. One thing I can tell you for sure: He will. But I also know that true change begins with you, in your heart. I have spent the last year allowing God to work on mine and He is far from finished. It is a painful
process but the rewards are worth the work.
The Lord honored my request for a break
I just realized. We have all been stir crazy ready to take a trip and get out of this house for awhile. Our little day trip around the mountain was nice and all but we were mainly stuck in the van the whole time. Things have come up seemingly every weekend that have stopped us from getting away....until now. The kids pretty much want to swim wherever we go while Mark and I want to hike. Mark suggested we go to the beach for a day and then trek over to the
Hoh Rainforest for a day hike. You might remember we
went to the Hoh in 2005 for Samuel's birthday. This is the trip I always refer to when I think of how well he did and felt with the
ostomy. He was the little
trailsman leading everyone on the gorgeous trail. Unfortunately, storm damage has closed this area for years after we had been there and there was no place to stay unless you liked tenting it (which I don't) or had an RV which we didn't until last year. I did a quick search to find trail conditions and found
this. The store was always there but the website wasn't and I don't know if the RV park was either. It is perfect. 20 miles from the ocean shore and about 15 minutes drive to the
Hoh trails. So, we are going.
I have been to the
Hoh twice in my life. The first on a spring trip with some college friends. We were not able to stay very long and I always wanted to come back and spend some quality time there. The second was with Mark and the kids. We weren't able to stay long that time either. Anna was just a year old and Samuel had many medical needs which meant day trips were short. We also did not have the "Backus Bus" (van) then either so traveling was very difficult. Today, it is a snap. This place is gorgeous! You can drive all over Western WA and it pretty much looks like the same place anywhere you go. But when you drive off the
hiway into the
Rainforest entrance, it is like you entered another world. And let me tell you, I need to "go to another world" to refresh my spirit. This is probably my favorite place on earth, next to the beach. Being very close to the beach is simply a bonus. So, we are going next week. Not for a day. Not for two days, but for several so I will actually finally have time to explore and enjoy it. Mark is certain Samuel will come along with us and I am sure he will too. Lately the lights flash in nearly every room I walk into and there is still no reason for it unless I give off an electrical charge I am unaware of. We are all very excited to go but probably no one more than I. Of course, I wish Samuel could
really go, you know with a body we can see and a laugh that echoes miles away. I wish he could lead us down all the trails and jump and play in the water. I pray that I will feel his presence close to me there the way I felt him so strongly at the beginning of April. Then I know sorrow will not infiltrate our trek there. At any rate, God obviously had His hand in me finding this now, at the exact time I was ready for it, so I know there will be "treasure" there. I cannot wait to find it.
Hoh Rainforest 2005